Publication:
Parenting children with Down syndrome: Societal influences

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dc.contributor.authorArteaga, Jorge
dc.contributor.authorHuiracocha Tutivén, Martha Karina
dc.contributor.authorHuiracocha Tutivén, María de Lourdes
dc.contributor.authorAlmeida Herdoiza, Carlos Alberto
dc.contributor.authorBlume, Stuart
dc.contributor.authorArteaga, Andrea
dc.date.accessioned2023-05-10T16:39:56Z
dc.date.available2023-05-10T16:39:56Z
dc.date.issued2017
dc.descriptionMost studies of parenting children with Down syndrome (DS) have been conducted in indus trialized countries. They suggest that sensitive communication on the part of professionals, and social support, can lead to acceptance and positive adjustments in the family. This study examined the impact of a diagnosis of DS on Ecuadorian families, in particular at how the diagnosis had been communicated and received, as well as the feelings and experiences which followed. Despite considerable progress in recent years, Ecuador is still marked by discriminatory attitudes which affect children with disabilities and their families, and by the persistence of widespread poverty. This qualitative study, conducted in Cuenca, Ecuador’s third largest city, is based on a focus group discussion and four in-depth interviews with Ecuadorian parents of DS children attending a spe cialist center in the city. The study shows that, reflecting the effects of status differences and lack of appropriate training, professionals rarely communicate a DS diagnosis in an appropriate manner. Further, it is shown that lack of social support, and the widespread stigmatization confronting children with DS and their families, hinder development of positive and empowering adjustments that would best serve the child’s and the family’s interest
dc.identifier.doi10.1177/1367493517727131
dc.identifier.issn1367-4935
dc.identifier.urihttp://dspace.ucuenca.edu.ec/handle/123456789/41872
dc.identifier.urihttps://www.scopus.com/record/display.uri?eid=2-s2.0-85034744463&origin=resultslist&sort=plf-f&src=s&sid=6f555b45b9d1d78c2c2f22e7184ea8d4&sot=b&sdt=b&s=TITLE-ABS-KEY%28Parenting+children+with+Down+syndrome%3A+Societal+influences%29&sl=73&sessionSearchId=6f555b45b9d1d78c2c2f22e7184ea8d4
dc.language.isoes_ES
dc.sourceJournal of Child Health Care
dc.subjectDown syndrome
dc.subjectstigma
dc.subjectfamily
dc.subjectCommunication skills
dc.subjectEcuador
dc.titleParenting children with Down syndrome: Societal influences
dc.title.alternative
dc.typeARTÍCULO
dc.ucuenca.afiliacionHuiracocha, M., Universidad del Azuay, Cuenca, Ecuador
dc.ucuenca.afiliacionArteaga, J., Ministerio de Salud Pública Ecuador (MSP), Quito, Ecuador
dc.ucuenca.afiliacionHuiracocha, M., Universidad de Cuenca, Facultad de Ciencias Médicas, Cuenca, Ecuador
dc.ucuenca.afiliacionAlmeida, C., Ministerio de Inclusión Económica y Social, Cuenca, Ecuador
dc.ucuenca.afiliacionBlume, S., University of Amsterdam, Amsterdam, Holanda
dc.ucuenca.afiliacionArteaga, A., Ministerio de Salud Pública Ecuador (MSP), Quito, Ecuador
dc.ucuenca.areaconocimientofrascatiamplio3. Ciencias Médicas y de la Salud
dc.ucuenca.areaconocimientofrascatidetallado3.3.13 Ciencias Sociales Biomédicas
dc.ucuenca.areaconocimientofrascatiespecifico3.3 Ciencias de la Salud
dc.ucuenca.areaconocimientounescoamplio09 - Salud y Bienestar
dc.ucuenca.areaconocimientounescodetallado0912 - Medicina
dc.ucuenca.areaconocimientounescoespecifico091 - Salud
dc.ucuenca.correspondenciaBlume, Stuart, ln.avu@emulb.s.s
dc.ucuenca.cuartilQ1
dc.ucuenca.factorimpacto0.465
dc.ucuenca.idautor0102154879
dc.ucuenca.idautor57197786812
dc.ucuenca.idautor0000-0002-7557-8830
dc.ucuenca.idautor57197780949
dc.ucuenca.idautor0101989028
dc.ucuenca.idautor0104728753
dc.ucuenca.indicebibliograficoSCOPUS
dc.ucuenca.numerocitaciones0
dc.ucuenca.urifuentehttps://www.ncbi.nlm.nih.gov/
dc.ucuenca.versionVersión publicada
dc.ucuenca.volumenVolumen 21, número 4
dspace.entity.typePublication
relation.isAuthorOfPublication07063e40-e100-4c15-9556-42e3a0faa6a5
relation.isAuthorOfPublication.latestForDiscovery07063e40-e100-4c15-9556-42e3a0faa6a5

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