Propuesta de un programa educativo co-diseñado para padres: Manejo de la alimentación en niños con disfagia

Abstract

Parents often experience high levels of stress and anxiety when feeding a child with dysphagia. Proper parental training in pediatric dysphagia is a cost-effective intervention that improves clinical outcomes and the utilization of healthcare resources. Additionally, it helps prevent severe complications such as malnutrition, dehydration, respiratory conditions, and developmental disorders. This is why, in the present study, an educational program for parents was developed based on Bandura's social learning theory for managing feeding in children with dysphagia. This approach identified the barriers and facilitators parents face, as well as their specific educational preferences and needs regarding modalities, content, and strategies for food education. A qualitative research design with an action-research approach was used, employing interviews that focused on identifying parental preferences for learning feeding management techniques from 12 parents and caregivers. The Atlas.ti program was used for data analysis. Following this, the basic guidelines for developing training on proper feeding management were established. As a result, a program was created that offers opportunities for learning, practicing, and sharing experiences with other parents, which can have a significant impact on children's well-being and the overall family dynamic.