Percepción de los padres sobre el cuidado de niños con trastorno del espectro autista (TEA), Centro de Rehabilitación Integral Especializado (CRIE) nº 5 Cuenca, 2020

Abstract

Background:Autism Spectrum Disorder (ASD) is not known completely, despite being an increasing health problem, with a current prevalence of approximately 1%. The perceptions that parents may have about caring for a child with ASD are multiple, but unknown, hiding negative attitudes generated by frustration, social isolation and forgetfulness.Objective:to determine the perceptions of parents about the care of children with Autism Spectrum Disorder (ASD), Centro de Rehabilitación Integral Especializado (CRIE) N ° 5 Cuenca, 2020.Methodology:It is a qualitative study that helpsto describe reality, under the requirements of grounded theory, based on interviews and focus groups applied to 10 parents of children with ASD who attend the Specialized Comprehensive Rehabilitation Center No. 5 (CRIE), who voluntarily agree to participate and sign the informed consent, using the principle of theoretical saturation. Subsequently, the information coding process willbe carried out; using computer programs such as Microsoft Word and ATLAS.ti version 8.0 respectively.Results:The information provided in this study helps to determine the perceptions of parents regarding the care of children with Autism Spectrum Disorder, such as: the knowledge that parents have about ASD and how it is not enough to satisfy all their needs, also there isthe lack of knowledge in society about Autism Spectrum Disorder, this has been manifested by some rejection reactionsthat people present to certain attitudes of a child with ASD.Conclusion:the continuous training of parentsby a multidisciplinary team of professionals and the interventions by the institutionsin charge of the protection of vulnerable groups, generate greater benefits in relation to the care of children with ASD since this is how they solve doubts and the lack of knowledge that is evident in parentsand society in general.